Using Airport Assistance When TravelingWhen I was first diagnosed with psoriasis, I could never imagine the journey my condition would open for me. I thought it was a curse and nothing good could come... By Vickie Wilkerson3 min readBookmark for laterReactions 0 reactions Comments3 comments
Why Patients, Caregivers, Advocates, and Health Leaders Share Our Health JourneysThere are many reasons why patients, caregivers, and advocates share our health journeys. My non-exhaustive list is below.Despite all of these important reasons, one thing we often don’t talk about... By Kristal Kent3 min readBookmark for laterReactions 0 reactions Comments0 comments
Replay: Minding Your Mental Health as a Content CreatorWatch the video below and join us as we discuss caring for your mental well-being in the digital age, tailored specifically for patient advocates and caregivers. Learn practical strategies and... By SocialHealthNetwork.com Team1 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Made Patient Advocacy and Health Leadership My CareerI decided to turn down my first big girl job a year after college. I have cystic fibrosis (CF), and my life had other plans in store-keeping up, in that... By Ella Balasa4 min readBookmark for laterReactions 0 reactions Comments9 comments
U.S. Service Dog Law BasicsHave you ever considered getting a service dog to help with your medical condition? Service dogs are dogs that are trained to help their owners with their disability. Disabilities are... By Tatiana Corbitt2 min readBookmark for laterReactions 0 reactions Comments2 comments
Navigating DM Requests for Money: 3 Thoughtful Responses for AdvocatesIn the digital age, having a following often comes hand in hand with unexpected direct messages asking for financial help. It’s a perplexing yet frequent occurrence—individuals assuming an advocate’s/public figure’s... By Elle Cole2 min readBookmark for laterReactions 0 reactions Comments8 comments
Breaking Up Is Hard To Do: When It’s Time To Find a New ProviderYou can start to sense when the relationship has run its course. Maybe clinic appointments are feeling rushed. Maybe you don’t feel heard or understood. Maybe you don’t feel comfortable... By Natalie Hayden3 min readBookmark for laterReactions 0 reactions Comments1 comments
Out of Necessity: Creating Lupus in Color to Help OthersLiving with lupus feels like navigating a complicated maze full of unexpected twists and turns. Lupus, a chronic autoimmune disease, can impact various organs and systems in the body, causing... By Racquel H. Dozier2 min readBookmark for laterReactions 0 reactions Comments2 comments
How Patient-Centered Care and Patient Leadership Go Hand-in-HandIn the ever-evolving landscape of healthcare, the concepts of patient-centered care and patient leadership have become increasingly vital in shaping the quality and effectiveness of how medical care is given... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments1 comments
The Art of Getting Paid for Patient Advocacy WorkIn the realm of patient advocacy, passion and dedication are often the driving forces behind the invaluable support provided to individuals navigating the complex world of healthcare. Often, we advocates... By Aaron Blocker2 min readBookmark for laterReactions 0 reactions Comments2 comments
Art As AdvocacyPatient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not only for the artist, but also for the... By Tatiana Corbitt2 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Got a Governor's Proclamation for Disease AwarenessOne of the things I wish that was available when I started my advocacy is that there would exist a handbook that gives you insight into what you can do... By Vickie Wilkerson3 min readBookmark for laterReactions 0 reactions Comments0 comments
Getting to Know Our Social Health Network MembersThe new Social Health Network (SHN) provides space to connect with other Patient Leaders. In August, we posted several prompts to the Social Health Network Facebook page to act as... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
10 Insights for Those Living With Chronic Conditions and Their CaregiversAs a passionate advocate for those living with multiple chronic conditions, I've walked alongside numerous individuals facing ongoing health challenges. I've witnessed firsthand the difficult nuances of the healthcare journey... By Elle Cole3 min readBookmark for laterReactions 0 reactions Comments5 comments
Fibromyalgia and Mental Health: The High Cost Survivors of Trauma PayRecently, I compiled a data analysis report. The data was collected through the Fibromyalgia Care Society of America’s (FCSA) application. It was important that I understood the needs of the 351 people waiting for our... By Milly Velez2 min readBookmark for laterReactions 0 reactions Comments2 comments
Building Relationships With LegislatorsAs an advocate focused mostly on healthcare policy and legislative advocacy, I am often asked how I connect with, and establish relationships with my legislators. Here are some of my... By Kristal Kent6 min readBookmark for laterReactions 0 reactions Comments6 comments
Expanding Your Value as a Patient Key Opinion LeaderAs a Patient Leader, you've answered the call to help other patients and caregivers in your community. Day in and day out, you're entrenched in your community's conversation. By sharing... By julie-croner4 min readBookmark for laterReactions 0 reactions Comments1 comments
My Journey in Becoming a Health AdvocateMy journey as a health care advocate started years ago when I became a CNA (Certified Nurses Assistant) I have always enjoyed helping others. As a teenager, I knew when... By Jackie English4 min readBookmark for laterReactions 0 reactions Comments9 comments
In America: What’s That?The In America survey is now closed. To learn more about the challenges of living with chronic, rare, and terminal health conditions, we are conducting our In America survey. By... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Replay: Connexion Advocacy Crafting Session With Carolyn RotellaHealthcare advocacy as a Health Leader is deeply meaningful work--it can also quickly lead to burnout. Crafting effective health advocacy strategies requires not only your expert knowledge as a patient... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments